Loving without condition, giving without measure, living for each moment


Waiting waiting waiting.  The past few weeks have felt like years.  It’s really impossible to describe the agony of watching a child truly start to fail.  I did it with Missy Doody, but didn’t really realize what was happening.  With Sydney, it has been pretty obvious.  So here we are, one week of being in the hospital.  Hospital living is such a weird thing, completely a parallel universe.  It’s hard to even remember that there is a “real world” passing by outside the windows.  And it’s exhausting!  Certainly not the sitting around doing nothing that you expect it to be.  Syd is so sick that she hasn’t been able to get out of bed and move around, so we’ve been trying to find things to occupy her time.  Amazingly, her sweet spirit has shone through, no matter how bad she was feeling, how hard she was struggling just to breathe.

Can you see how blue she is?  During her cath, they tested her on room air and her saturation level was 52%.  Unbelievable that a child fighting that hard could still laugh and smile and play.  And play she did…

So tomorrow is the “big day,” hopefully her last surgery for a very long time.  She has a 3 year old’s understanding of what is going to happen, and is a little anxious about it; we have an adult’s understanding and therefor lots of anxiety.  But I know that it’s in God’s hands, and I trust in that.  Sydney we love you.  You are our hero.


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